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On the edge of Baclofen prescription in the Uk?


Baclofenman

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Baclofenman

OMG - I am not sure if anyone remembers but a while ago I was trying to get my GP to prescribe and support my Baclofen journey - She has seen a improvement in my own health since my stroke in March 2015 and told me she would think about it - She is really cool but as a junior GP in the practice, I thought she would be governed by the old fuddy duddies that run the show?

Well, I booked my 3 month appointment and was about to send her the link to Amanda Staffords report on the German report conference but I could not find my email so searched and guess what, I found her reply in my spam box

 

My GP said:

Dear Mr xxxxx

Many thanks indeed for your emails containing details about your self treatment with Baclofen. I have read through some of your links and have also completed some of my own research. I would be happy to continue supporting you and the significant life changes you have made and would suggest that you make an appointment to see me to discuss future plans at your convenience.

Kind regards

Dr xxxxx

So, I may be closer to 50 than 40 but I am excited 

I keep reading it and trying to convince myself she is not going to prescribe and support, or just support - I don't really know now - What do others read into her email?

If she prescribes, I don't think she realises how BIG this is.....

Don't worry about pissing on my chips, I am a big boy now

Regards

 

(Like a child at Christmas) Bacman

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Wow wow and wow.That is groundbreaking and amazing that she is even thinking about it.The doctor I first went to see (my doc was on long term sick) said he would be struck off if he prescribed it for me and a subsequent visit to another doc had him saying if I was on Baclofen they basically couldn't treat me for anything else and sujested I see the private doctor (dr Chick) for anything else I might need.So this time round I'm keeping it to myself 

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Baclofenman
7 minutes ago, Nicnak said:

Wow wow and wow.That is groundbreaking and amazing that she is even thinking about it.The doctor I first went to see (my doc was on long term sick) said he would be struck off if he prescribed it for me and a subsequent visit to another doc had him saying if I was on Baclofen they basically couldn't treat me for anything else and sujested I see the private doctor (dr Chick) for anything else I might need.So this time round I'm keeping it to myself 

I know,i know, I know - Just thinking, she says "I would be happy to continue supporting you" - Does this mean as a GP or does this mean she will support, as in prescribe??

I knew she would think about it because she loves me and we always go over our allocated time talking about our travels and our joint love of old cars - She is a young female GP but she loves old cars - Strange but true!!

My pal up the road is a GP and she had never heard of it for Alcohol treatment - I think my GP is a good one who has the attitude "if it works" - her words to me last time we spoke

Yes, you are right too many GP's are too stuck in their ways to be flexible 

I am not specifically needing the prescription for financial gain, it is the recognition that a GP is prepared to prescribe that is the crux for me

Regards

 

Bacman

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@Baclofenman That is great news!  Yes, I think it means she would prescribe and support.  I couldn't believe it when my GP prescribed it for me, but it was after I was successfully doing it by myself.  Definitely point her to the Australian website.  Good work!

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Bacman, that is brilliant news!  I doubt if she would prescribe above 100 mg a day, which is the max for adults acc to the BNF, but even so, that would be great & just having her support would be wonderful.

Contrast that with Nicnak's GP who frankly sounds a right tw*t! Of course he wouldn't be "struck off" for prescribing bac off label. Lots of GPs prescribe off label (sounds like Bacman's GP would do it) for all sorts of reasons. The ones who don't are just watching their backs, although you can hardly blame them for that in this increasingly litigious age. Most just haven't heard of bac for alcoholism. In fact I have recently exchanged emails with a GP with alcohol addiction who is newly sober, & who says she had never thought of using meds to help her get sober! I directed her to this website which she says she finds interesting - so maybe she might in future consider prescribing for her patients. It only needs a few GPs to start the ball rolling - word spreads via doctors' websites such as Doctorsnet. And hopefully this big meeting in the autumn at which the BACLAD study will be presented will raise its profile.

We really need GPs to be on board. Psychiatrists who specialise in addiction are few & far between, & getting to see one is a lost cause - witness all the discussions on here about trying to find a psychiatrist in the USA who will prescribe!

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Baclofenman

@Nicnak

 

On 07/09/2016 at 3:11 PM, Nicnak said:

I'm in the southeast of the U.K bacman and if she does prescribe you I could maybe take this to my doctor in the future when I've been indifferent for longer

Hi Nicnak

If, everything goes according to plan, when I revisit her I will ask if she will take calls from another GP - No probs

Regards

 

Bacman

 

 

 

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Baclofenman
On 07/09/2016 at 7:49 PM, Molly78 said:

Bacman, that is brilliant news!  I doubt if she would prescribe above 100 mg a day, which is the max for adults acc to the BNF, but even so, that would be great & just having her support would be wonderful.

@Molly78

Evening Molls

I totally agree - I am not in this for the money advantages of an NHS prescription, more for the recognition that this stuff works and has a place in the GP's armoury for the fight against alcoholism - It would be even greater if she would talk to other GP's (like Nicnak's) to explain her actions rather than people having to relay on "bought" prescriptions from the like of Chick and the others

Still reflecting on my own situation, I find myself analysing the phrase "continued support" - I mean, she is not currently offering me any support, Yes, she knows I self medicate - Is this offering me support? - You know, when you are on the £1m question, I think and when Tarrant asks you what your name is you will be unsure you are giving the right answer? - I think this is what I feel like - Maybe not the right analogy but at the moment I cant think of another - You know, when you know it's going to go tits up and it goes much better than you thought, perhaps that a better analogy? - Maybe not, maybe I am just waffling, talking bollox, whatever? - Maybe I should just wait until Monday and relax a little?

On 07/09/2016 at 7:49 PM, Molly78 said:

Contrast that with Nicnak's GP who frankly sounds a right tw*t! Of course he wouldn't be "struck off" for prescribing bac off label. Lots of GPs prescribe off label (sounds like Bacman's GP would do it) for all sorts of reasons. The ones who don't are just watching their backs, although you can hardly blame them for that in this increasingly litigious age. Most just haven't heard of bac for alcoholism. In fact I have recently exchanged emails with a GP with alcohol addiction who is newly sober, & who says she had never thought of using meds to help her get sober! I directed her to this website which she says she finds interesting - so maybe she might in future consider prescribing for her patients. It only needs a few GPs to start the ball rolling - word spreads via doctors' websites such as Doctorsnet. And hopefully this big meeting in the autumn at which the BACLAD study will be presented will raise its profile.

I looked at doctorsnet, you need a GMC number and they do not allow bots on the site but it would appear that there may be some interesting stuff behind those closed doors - The problem as I see it is that apart from the reasons you mention above is that too many GP's are comfortable with what they know - They are not prepared to think "outside the box"  too consider off label prescribing - It may be for many reasons, training, mentality or in some, arrogance - I sort of see where Otter was coming from when he suggested bringing out the "duty of care" statement, I don't agree with this but I understand the frustrations which would lead someone to use this card - I mean, playing devils advocate, why bother prescribing something that is off label, risking criticism or bad effects to your patient? - There is a risk in taking Baclofen to which we are all too aware of - Better off sticking to the NHS guideline and having an easy life - I am sorry but not all GP's are in it for the patient

But then there are the ones who want to make a difference, like mine - And Yes, without getting this out into the eye of the GP's and medical professionals the likes of me, you and Nicnak are pissing into the wind blown by the old school fuddy duddy medical profession  

I was just reading a translation of the ANSM (French Drug Agency) and seen that the go ahead to prescribe Baclofen was also to include additional external help - Something I was not aware of

On 07/09/2016 at 7:49 PM, Molly78 said:

We really need GPs to be on board. Psychiatrists who specialise in addiction are few & far between, & getting to see one is a lost cause - witness all the discussions on here about trying to find a psychiatrist in the USA who will prescribe!

It seems you can only get a Baclofen prescription if you pay for it - This cannot be right

Regards

 

Bacman

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In between getting my Baclofen before and now I thought I had found the solution in Dr Chick.I had to pay his fee of £220 but I thought this was ok if I was going to get Baclofen for the price of a prescription so in the long run it would be worth it.But because it was a private prescription it worked out about £50 a month,not much cheaper than I'm paying for it now from golpharma.And he could only give me a script every 2 weeks so kept having to email him and keeping him up to date.That was last year and I gave up because of going down to fast because of worrying about a new batch coming and loosing my switch  and my doctor being an ar*se.

So this time round I'm going it alone

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Baclofenman
8 minutes ago, Nicnak said:

In between getting my Baclofen before and now I thought I had found the solution in Dr Chick.I had to pay his fee of £220 but I thought this was ok if I was going to get Baclofen for the price of a prescription so in the long run it would be worth it.But because it was a private prescription it worked out about £50 a month,not much cheaper than I'm paying for it now from golpharma.And he could only give me a script every 2 weeks so kept having to email him and keeping him up to date.That was last year and I gave up because of going down to fast because of worrying about a new batch coming and loosing my switch  and my doctor being an ar*se.

So this time round I'm going it alone

Oh, I see - He was prescribing in return for a note of progress - This would be argued as support but is not convincing - On a private prescription you have to pay a recurring fee to the prescribing doctor and an increased prescription fee, which will explain why you paid nearly £50 a month - I wrote a thread about a European Baclofen (Polpharma Baclofen) supplier who supplied me @ $17.50US for 50 x 25mg tablets

Regards

 

Bacman

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I'm paying £28 for 100 X 25 mg from Goldpharma don't  know how that equates in dollars.But what I like about these tabs is they are the brand I got in this country from boots.I know a lot of people say Baclofen us Baclofen but I had a bad experience with a brand called Pacifen and always have that in the back of my head.

Have you seen the gp yet about Baclofen?

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Baclofenman
11 hours ago, Nicnak said:

I'm paying £28 for 100 X 25 mg from Goldpharma don't  know how that equates in dollars.But what I like about these tabs is they are the brand I got in this country from boots.I know a lot of people say Baclofen us Baclofen but I had a bad experience with a brand called Pacifen and always have that in the back of my head.

Have you seen the gp yet about Baclofen?

Hi Nicnak

I have seen the GP, she has prescribed for me however I am not able to discuss this currently as I am taking advice as to where to go, from here - I need to obtain clarity as to the way forward

Give or take a $ or a £, this is basically the same

What brand of Baclofen did you get from Boots on Chick's script?

Regards

 

Bacman

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On 08/09/2016 at 10:49 PM, Baclofenman said:

Oh, I see - He was prescribing in return for a note of progress - This would be argued as support but is not convincing - On a private prescription you have to pay a recurring fee to the prescribing doctor and an increased prescription fee, which will explain why you paid nearly £50 a month - I wrote a thread about a European Baclofen (Polpharma Baclofen) supplier who supplied me @ $17.50US for 50 x 25mg tablets

Regards

 

Bacman

I received repeat prescriptions from Dr Chick, all I had to pay was the cost at the pharmacy - they charge per pill, and the exact cost can vary.

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That's all I had to pay after his initial fee but boots charged me way over the prescription price because it was a private prescription.But someone else that went to see him lives in the north of England only had to pay the prescription price.All I can think is that it's because I live in the south of England because I tried 3 different pharmacys and they were about the same

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3 hours ago, Nicnak said:

That's all I had to pay after his initial fee but boots charged me way over the prescription price because it was a private prescription.But someone else that went to see him lives in the north of England only had to pay the prescription price.All I can think is that it's because I live in the south of England because I tried 3 different pharmacys and they were about the same

Yes it's charged at the cost per pill, which can work out much more than standard NHS prescription one off charge of £7 (or whatever it's up to these days). I understood it's the actual true cost of the medication + possibly something so the pharmacy make a profit.

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